Patient Engagement Liaison – Clinical

Job Description:

• Engage with the rare disease community, including patient advocacy organizations, to understand the rare experience and incorporate insights throughout PTC Therapeutics
• Collaborate with internal PTC teams to identify, educate, build, and leverage relationships with people living with rare diseases, caregivers, and Patient Advocacy Organizations
• Assist communities with resources to help remove access barriers and gain coverage for marketed products, when appropriate
• Build patient advocacy and community relationships for currently marketed product disease states and products in development, consistent with applicable regulations
• Work cross-functionally with medical, communications, commercial, legal, and compliance colleagues to follow country-specific guidelines, standards, and regulations
• Connect families to Patient Advocacy Organizations and resources
• Develop, plan, and execute educational programs for people living with rare diseases and their caregivers
• Support Patient Advocacy Organizations through shared interests in education and programs
• Work with the rare disease community to advocate for access to care and therapies

Requirements:

• Bachelor’s degree in a related clinical or scientific discipline, including nursing, public health, or social work
• 5 years of experience in pharmaceutical, biotechnology, advocacy, medical, or related field
• Experience supporting people with rare diseases, their caregivers, and advocacy organizations
• Understanding of healthcare, specialty pharmacy, pharma, and biotech industry
• Maintenance of all compliance rules and confidentiality
• Demonstrated leadership working as part of cross-functional teams
• History of building and maintaining strong internal and external relationships
• Proficiency with Microsoft Office suite and Zoom
• Excellent verbal and written communication and presentation skills, including explaining technical information to non-technical audiences
• Ability to work independently and collaboratively in a fast-paced matrixed team environment
• Analytical and critical-thinking skills; ability to adapt to changing priorities and deadlines
• Excellent planning, organization, and time-management skills
• Ability to enter data quickly, confidentially, and accurately into CRM
• Up to 75% domestic travel, including overnights, weekends, and evening responsibilities as needed
• Potential for international travel as needed
• Valid driver’s license and clean driving record
• Ability to travel extensively throughout the assigned territory, country, and potentially globally
• Ability to lift/carry up to 50 pounds